<![CDATA[MESH cornwall Forum - All Forums]]> http://meshcornwall.org/forum/ Mon, 06 Feb 2012 04:52:14 +0000 MyBB <![CDATA[GOOGLE THREAT on MESH WEBSITE]]> http://meshcornwall.org/forum/showthread.php?tid=722 Fri, 19 Aug 2011 19:13:10 +0000 http://meshcornwall.org/forum/showthread.php?tid=722
The warning has been applied by Google after the forums were targetted by spammers.

There is no malware on the MESH website and we have requested a review of the website by Google.

To access the MESH website
open a new tab/page
copy and paste this link - http://uk.yahoo.com/
search MESH cornwall
click meshcornwall.org

Normal service will be resumed as soon as possibleBig Grin]]>
The warning has been applied by Google after the forums were targetted by spammers.

There is no malware on the MESH website and we have requested a review of the website by Google.

To access the MESH website
open a new tab/page
copy and paste this link - http://uk.yahoo.com/
search MESH cornwall
click meshcornwall.org

Normal service will be resumed as soon as possibleBig Grin]]> <![CDATA[Wheelchair services Cornwall]]> http://meshcornwall.org/forum/showthread.php?tid=721 Mon, 08 Aug 2011 09:08:29 +0000 http://meshcornwall.org/forum/showthread.php?tid=721

The PCT has commissioned Disability Cornwall to find out from wheelchair service users in Cornwall how they can become more involved in shaping services to ensure they continue to improve.



We have developed a short survey for people to take part in the process. If you are a wheelchair user, or a parent or carer of someone who uses a wheelchair, please tell us your views. Alternatively you can forward this email to relevant individuals or organisations in order to maximise the feedback we receive.



Please follow the link below to take part. The survey should take no more than 10 minutes and, as an added incentive, we are entering everyone who takes part the chance to win one of two £25 vouchers from Marks and Spencer.



https://www.surveymonkey.com/s/TZDLYLX



Your views are important. Please take this opportunity to help make wheelchair services in Cornwall an example for others to follow.

Thank you for taking part Big Grin]]>

The PCT has commissioned Disability Cornwall to find out from wheelchair service users in Cornwall how they can become more involved in shaping services to ensure they continue to improve.



We have developed a short survey for people to take part in the process. If you are a wheelchair user, or a parent or carer of someone who uses a wheelchair, please tell us your views. Alternatively you can forward this email to relevant individuals or organisations in order to maximise the feedback we receive.



Please follow the link below to take part. The survey should take no more than 10 minutes and, as an added incentive, we are entering everyone who takes part the chance to win one of two £25 vouchers from Marks and Spencer.



https://www.surveymonkey.com/s/TZDLYLX



Your views are important. Please take this opportunity to help make wheelchair services in Cornwall an example for others to follow.

Thank you for taking part Big Grin]]> <![CDATA[a little about me]]> http://meshcornwall.org/forum/showthread.php?tid=446 Fri, 15 Jul 2011 14:06:58 +0000 http://meshcornwall.org/forum/showthread.php?tid=446 <![CDATA[Professor AJ Pinching @ Liskeard 4thJuly]]> http://meshcornwall.org/forum/showthread.php?tid=441 Sat, 25 Jun 2011 09:10:58 +0000 http://meshcornwall.org/forum/showthread.php?tid=441


A BIG EVENT !

Current Perspectives on Chronic Fatigue Syndrome CFS/ME by Professor A J Pinching
(a final talk before his retirement)

ALL WELCOME
Monday 4th July ... 6.30pm The Public Hall LISKEARD PL14 6BW
free parking after 4pm (opposite hall) in the Westbourne car park
£1 (free to accompanying carers) disabled access and refreshments provided

DETAILS: E: MESHcornwall@live.co.uk T: 01736 756775





Hope to see you there Big Grin]]>


A BIG EVENT !

Current Perspectives on Chronic Fatigue Syndrome CFS/ME by Professor A J Pinching
(a final talk before his retirement)

ALL WELCOME
Monday 4th July ... 6.30pm The Public Hall LISKEARD PL14 6BW
free parking after 4pm (opposite hall) in the Westbourne car park
£1 (free to accompanying carers) disabled access and refreshments provided

DETAILS: E: MESHcornwall@live.co.uk T: 01736 756775





Hope to see you there Big Grin]]> <![CDATA[Expert Patient Programme Merlin Centre]]> http://meshcornwall.org/forum/showthread.php?tid=435 Wed, 15 Jun 2011 08:36:01 +0000 http://meshcornwall.org/forum/showthread.php?tid=435
It is to be held at the Merlin Centre every Friday for 6 weeks from 15th July 10.30 - 1pm.

The course is for people with long term health problems, it aims to improve your quality of life, learn new skills to manage your condition, meet others and share experiences, communicate better with family, friends and professionals and to feel more in control of your condition.

Contact: cathie.shipwright@ciospct.cornwall.nhs.uk / 01208 252507

I realise it is beyond most of us but I do know someone who attended the first session and found the information pack very useful.
The Merlin Centre is at Hewas Water St. Austell PL26 7JF]]>
It is to be held at the Merlin Centre every Friday for 6 weeks from 15th July 10.30 - 1pm.

The course is for people with long term health problems, it aims to improve your quality of life, learn new skills to manage your condition, meet others and share experiences, communicate better with family, friends and professionals and to feel more in control of your condition.

Contact: cathie.shipwright@ciospct.cornwall.nhs.uk / 01208 252507

I realise it is beyond most of us but I do know someone who attended the first session and found the information pack very useful.
The Merlin Centre is at Hewas Water St. Austell PL26 7JF]]> <![CDATA[Sharing learnings]]> http://meshcornwall.org/forum/showthread.php?tid=377 Sat, 21 May 2011 11:08:30 +0000 http://meshcornwall.org/forum/showthread.php?tid=377
I have joined this forum so that I can share what I've learned so far with others and maybe learn a bit myself. I am 35yo and first developed cfs/m.e over 7 years ago when I was so bad I couldn't leave the house for weeks at a time to where I am now, having made huge strides in my recovery and am pretty much in the final stages.

During my quest for health I have tried Mickel Therapy, Reverse Therapy, Lightning Process, EFT, Hypnotherapy, nutrition, Yoga, Tai Chi, Optimum Health Clinic approaches (even doing the practitioner course!), the Crysalis Effect, pacing, and many more as well as reading dozens and dozens of books around the subject and am happy to share my findings / experiences with you via the forum, over the telephone, face to face, whatever..

During this time I have seen so many others recover completely using the same tools in a much shorter period of time. It has just taken me longer because I had quite a strong achiever pattern going on in the background, which meant that I would push myself too hard when my energy picked up a little and yo-yo between almost well and almost dead! Pretty sure I've got that one covered now too though.

If you interested in comparing notes, give me a shout!

G]]>
I have joined this forum so that I can share what I've learned so far with others and maybe learn a bit myself. I am 35yo and first developed cfs/m.e over 7 years ago when I was so bad I couldn't leave the house for weeks at a time to where I am now, having made huge strides in my recovery and am pretty much in the final stages.

During my quest for health I have tried Mickel Therapy, Reverse Therapy, Lightning Process, EFT, Hypnotherapy, nutrition, Yoga, Tai Chi, Optimum Health Clinic approaches (even doing the practitioner course!), the Crysalis Effect, pacing, and many more as well as reading dozens and dozens of books around the subject and am happy to share my findings / experiences with you via the forum, over the telephone, face to face, whatever..

During this time I have seen so many others recover completely using the same tools in a much shorter period of time. It has just taken me longer because I had quite a strong achiever pattern going on in the background, which meant that I would push myself too hard when my energy picked up a little and yo-yo between almost well and almost dead! Pretty sure I've got that one covered now too though.

If you interested in comparing notes, give me a shout!

G]]> <![CDATA[Forum update]]> http://meshcornwall.org/forum/showthread.php?tid=376 Fri, 20 May 2011 16:42:31 +0000 http://meshcornwall.org/forum/showthread.php?tid=376
I have hopefully managed to stop 99% of all the advertising rubbish that was being posted on the forum. Why these people want to ruin a charitable forum like this MESH cornwall is beyond me!

Anyway I am looking for any volunteers that would like to become Moderators on the forum which would help me keep an eye on things and delete any unsavoury posts.

Please message me via the forum if you are willing to become a Moderator.

Chris.]]>
I have hopefully managed to stop 99% of all the advertising rubbish that was being posted on the forum. Why these people want to ruin a charitable forum like this MESH cornwall is beyond me!

Anyway I am looking for any volunteers that would like to become Moderators on the forum which would help me keep an eye on things and delete any unsavoury posts.

Please message me via the forum if you are willing to become a Moderator.

Chris.]]> <![CDATA[Forum problems!]]> http://meshcornwall.org/forum/showthread.php?tid=373 Thu, 12 May 2011 19:53:00 +0000 http://meshcornwall.org/forum/showthread.php?tid=373 The forum has been targeted lately by numerous unscrupulous people flooding the forum with advertising. This has caused some functions not too work, I am doing my best to rectify the problems caused by these unsavoury people.
In the the future I will have to reluctantly change the way people join the forum so that they can post on the forum once they have been cleared by admin. ]]> The forum has been targeted lately by numerous unscrupulous people flooding the forum with advertising. This has caused some functions not too work, I am doing my best to rectify the problems caused by these unsavoury people.
In the the future I will have to reluctantly change the way people join the forum so that they can post on the forum once they have been cleared by admin. ]]> <![CDATA[New to mesh]]> http://meshcornwall.org/forum/showthread.php?tid=348 Tue, 26 Apr 2011 07:12:13 +0000 http://meshcornwall.org/forum/showthread.php?tid=348 <![CDATA[Audio books.]]> http://meshcornwall.org/forum/showthread.php?tid=167 Tue, 05 Apr 2011 17:55:42 +0000 http://meshcornwall.org/forum/showthread.php?tid=167 I was wondering if any other person is using audio books as I personally have found them a god sendAngel
I bought an Amazon Kindle but found any type of reading a real demand on my energyAngry
I found I can download audio books from Audible.co.uk and transfer them from my computer onto the Kindle and its blissHeart
I've listened to Ken Follets Pillars of the Earth ( about 40hrs) and am now listening to Frank Herberts Dune, which I had read many years back.
The discovery of the audio books has been a revelation for me and has helped me get through many hours whilst poorly.
If anyone wants further advice I will be more than willing to help. Big Grin]]> I was wondering if any other person is using audio books as I personally have found them a god sendAngel
I bought an Amazon Kindle but found any type of reading a real demand on my energyAngry
I found I can download audio books from Audible.co.uk and transfer them from my computer onto the Kindle and its blissHeart
I've listened to Ken Follets Pillars of the Earth ( about 40hrs) and am now listening to Frank Herberts Dune, which I had read many years back.
The discovery of the audio books has been a revelation for me and has helped me get through many hours whilst poorly.
If anyone wants further advice I will be more than willing to help. Big Grin]]> <![CDATA[Just joined]]> http://meshcornwall.org/forum/showthread.php?tid=165 Tue, 29 Mar 2011 18:43:27 +0000 http://meshcornwall.org/forum/showthread.php?tid=165
I'm pretty much recovered now. I'm probably about 70-80% on the M.E. scale. It's certainly been a difficult illness but I've come through the worst of it.

Although I'm not yet fully recovered, so still unable to work. Walking is still very tiring and occasionally I still need to rest during the day. But I can drive and and I'm independent, so I'm very thankful that I'm nearly recovered.]]>
I'm pretty much recovered now. I'm probably about 70-80% on the M.E. scale. It's certainly been a difficult illness but I've come through the worst of it.

Although I'm not yet fully recovered, so still unable to work. Walking is still very tiring and occasionally I still need to rest during the day. But I can drive and and I'm independent, so I'm very thankful that I'm nearly recovered.]]> <![CDATA[Hi Everyone]]> http://meshcornwall.org/forum/showthread.php?tid=164 Tue, 29 Mar 2011 13:50:11 +0000 http://meshcornwall.org/forum/showthread.php?tid=164 . This resulted in being virtually housebound, caring for my daughter, trying to hold a part time job, very depressed and barely able to look after myself. So now I am 37 and my daughter is 13, its been a hard 13 years especially the first few not knowing why I wasnt coping like other mumsHuh. My Husband is brilliant but he works full time to try to keep a roof over our heads and I am unable to work or claim any benefits to help. I have up until about 18 months ago managed ok with the advice from Prof. P. However since my dad died I have gone backwards dramatically, so am now having visits from the Occ. Therapist. Finding the pacing very hard, and also writing all activities down is making me feel worse at the moment, I dont seem to be able to get any energy to build up enough to go out for a short walk with our greyhound. I cant remember the last time I felt well. Feel quite depressed that I have gone backwards after all these years. I generally have always kept positive an happy but it is difficult lately. Sorry to moan so much, I will cheer up soonCool]]> . This resulted in being virtually housebound, caring for my daughter, trying to hold a part time job, very depressed and barely able to look after myself. So now I am 37 and my daughter is 13, its been a hard 13 years especially the first few not knowing why I wasnt coping like other mumsHuh. My Husband is brilliant but he works full time to try to keep a roof over our heads and I am unable to work or claim any benefits to help. I have up until about 18 months ago managed ok with the advice from Prof. P. However since my dad died I have gone backwards dramatically, so am now having visits from the Occ. Therapist. Finding the pacing very hard, and also writing all activities down is making me feel worse at the moment, I dont seem to be able to get any energy to build up enough to go out for a short walk with our greyhound. I cant remember the last time I felt well. Feel quite depressed that I have gone backwards after all these years. I generally have always kept positive an happy but it is difficult lately. Sorry to moan so much, I will cheer up soonCool]]> <![CDATA[On Line diary 'Twitter']]> http://meshcornwall.org/forum/showthread.php?tid=163 Sat, 26 Mar 2011 19:15:26 +0000 http://meshcornwall.org/forum/showthread.php?tid=163 having just relapse again I've decided to keep some sort of online diary the easiest being Twitter.
If anyone wants to follow me my search name is pmclarke5, its to see how I improve and also to see where I'm going wrong.
Cheers Paul. Smile
Or search name is @pmclarke5
not quite sure.
Cheers Paul]]> having just relapse again I've decided to keep some sort of online diary the easiest being Twitter.
If anyone wants to follow me my search name is pmclarke5, its to see how I improve and also to see where I'm going wrong.
Cheers Paul. Smile
Or search name is @pmclarke5
not quite sure.
Cheers Paul]]> <![CDATA[Hi from a nother new guy.]]> http://meshcornwall.org/forum/showthread.php?tid=140 Wed, 09 Mar 2011 13:28:16 +0000 http://meshcornwall.org/forum/showthread.php?tid=140
After finally getting fed up with my local doctors and getting refered to Prof Pinchings dept, i figured i'd sign up on th MESH forums aswell.

I'm Nick 35 and in Cornwall. I was diagnosed with ME/cfs about 8 years ago now. the doctor explained that she didnt believe in ME but if she did then that is definatley what i had....

That was my first of many negative experiences with GP's. Since then i have slowly done away with making doctors visits as i always come away from them somewhat disheartened as if i must be a little mad in the head to suggest my severe tiredness and confusion is an illness.

My illness tends to come and go where i may be fine for months as long as im careful and then over a period of a few days i can feel a knowing ache or my eyes start blurring or i get severe numbness in my legs along with the usual fatigue. having to prop myself up against a wall to do the dishes is my latest telltale signSmile.

Im lucky that im self employed and limit myself to 15 to 20 hours a week. I occasionally manage the gym or walks etc but they are often responsible for huge relapses. i havent had any severe confusion or "brain fog" in a while. it used to get so bad that i couldnt speak coherently.

Guilt was a big problem for me for a long time thinking that i must be just lazy or unfit or something and my siblings not understanding was hard to deal with.

Staying inside and not being social led to a number of anxiety problems and i guess a bit of depression however, i seem to be really on top of those negative aspects these days.

Im lucky to have a partner who is very patient and understanding (plus a degree in counselling helps lol).

other silly or maybe important things ive noted are

*i take omeprazole for jumpy acid and if ever i stop taking it i ALWAYS get my ME/cfs symptoms back for weeks and weeks

*I have signs of having had glandular fever but have no re3collection of this

*illness started as severe flu after wild camping in the lake district however the doctors tell me not to even consider lyme's disease as its really rare.( this i have tried fighting as prior to thgis i was an outdoor instructor and spend many weeks of a year in wales/scotland hill walking and camping etc etc).

*I disagree that CBT is effective in treating ME and have found the easist way is to start by doing NOTHING and then slowly create a routine and add to my daily routine and just monitor how im feeling.

Anyways. this was only meant to be a quick introduction and a chance to say hi but guess im feeling vocal today.

Its great to have found a forum linked to this and i really cant believe i didnt think about looking for one before.]]>
After finally getting fed up with my local doctors and getting refered to Prof Pinchings dept, i figured i'd sign up on th MESH forums aswell.

I'm Nick 35 and in Cornwall. I was diagnosed with ME/cfs about 8 years ago now. the doctor explained that she didnt believe in ME but if she did then that is definatley what i had....

That was my first of many negative experiences with GP's. Since then i have slowly done away with making doctors visits as i always come away from them somewhat disheartened as if i must be a little mad in the head to suggest my severe tiredness and confusion is an illness.

My illness tends to come and go where i may be fine for months as long as im careful and then over a period of a few days i can feel a knowing ache or my eyes start blurring or i get severe numbness in my legs along with the usual fatigue. having to prop myself up against a wall to do the dishes is my latest telltale signSmile.

Im lucky that im self employed and limit myself to 15 to 20 hours a week. I occasionally manage the gym or walks etc but they are often responsible for huge relapses. i havent had any severe confusion or "brain fog" in a while. it used to get so bad that i couldnt speak coherently.

Guilt was a big problem for me for a long time thinking that i must be just lazy or unfit or something and my siblings not understanding was hard to deal with.

Staying inside and not being social led to a number of anxiety problems and i guess a bit of depression however, i seem to be really on top of those negative aspects these days.

Im lucky to have a partner who is very patient and understanding (plus a degree in counselling helps lol).

other silly or maybe important things ive noted are

*i take omeprazole for jumpy acid and if ever i stop taking it i ALWAYS get my ME/cfs symptoms back for weeks and weeks

*I have signs of having had glandular fever but have no re3collection of this

*illness started as severe flu after wild camping in the lake district however the doctors tell me not to even consider lyme's disease as its really rare.( this i have tried fighting as prior to thgis i was an outdoor instructor and spend many weeks of a year in wales/scotland hill walking and camping etc etc).

*I disagree that CBT is effective in treating ME and have found the easist way is to start by doing NOTHING and then slowly create a routine and add to my daily routine and just monitor how im feeling.

Anyways. this was only meant to be a quick introduction and a chance to say hi but guess im feeling vocal today.

Its great to have found a forum linked to this and i really cant believe i didnt think about looking for one before.]]> <![CDATA[new!]]> http://meshcornwall.org/forum/showthread.php?tid=139 Tue, 08 Mar 2011 11:07:29 +0000 http://meshcornwall.org/forum/showthread.php?tid=139 ]]> ]]> <![CDATA[New to MESH]]> http://meshcornwall.org/forum/showthread.php?tid=138 Mon, 28 Feb 2011 11:55:15 +0000 http://meshcornwall.org/forum/showthread.php?tid=138 <![CDATA[prof pinching referral]]> http://meshcornwall.org/forum/showthread.php?tid=137 Tue, 15 Feb 2011 15:53:40 +0000 http://meshcornwall.org/forum/showthread.php?tid=137
any advice welcome!]]>
any advice welcome!]]> <![CDATA[Any support groups in Truro or Falmouth]]> http://meshcornwall.org/forum/showthread.php?tid=134 Wed, 19 Jan 2011 16:19:32 +0000 http://meshcornwall.org/forum/showthread.php?tid=134
I was wondering if there are any support groups in Truro or Falmouth for people who suffer from ME/CFS?

I am on Job Seekers at the moment as I am waiting for my appeal against ISA to happen, when I went on Job Seekers i got put onto a programme called Plus which helps people who have got an illness/disablity get ready for work and the lady who I see is very helpul as she has got an illness similar to ME/CFS and told me to see if there are any support groups I can join, so here I am.

If anyone knows of a suuport group or any extra help I would be very grateful.

If there isnt any support groups in Truro or Falmouth and someone would want to set one up with me then message me.

Hope everyone is having a good day.

take care, and thank you for reading.

Laura]]>
I was wondering if there are any support groups in Truro or Falmouth for people who suffer from ME/CFS?

I am on Job Seekers at the moment as I am waiting for my appeal against ISA to happen, when I went on Job Seekers i got put onto a programme called Plus which helps people who have got an illness/disablity get ready for work and the lady who I see is very helpul as she has got an illness similar to ME/CFS and told me to see if there are any support groups I can join, so here I am.

If anyone knows of a suuport group or any extra help I would be very grateful.

If there isnt any support groups in Truro or Falmouth and someone would want to set one up with me then message me.

Hope everyone is having a good day.

take care, and thank you for reading.

Laura]]> <![CDATA[Question]]> http://meshcornwall.org/forum/showthread.php?tid=128 Wed, 01 Dec 2010 00:40:18 +0000 http://meshcornwall.org/forum/showthread.php?tid=128
Many thanks
Marisa
======================================
meshcornwall.org rocks! | TvWebi Review]]>
Many thanks
Marisa
======================================
meshcornwall.org rocks! | TvWebi Review]]> <![CDATA[Advertising]]> http://meshcornwall.org/forum/showthread.php?tid=126 Mon, 22 Nov 2010 18:02:24 +0000 http://meshcornwall.org/forum/showthread.php?tid=126 If you do come across such posts please do let me know via the messaging system, thank you.

Chris.]]> If you do come across such posts please do let me know via the messaging system, thank you.

Chris.]]>