MESH cornwall Forum

Geez guys I know this is a forum for people with ME but we could at least make a small effort to post and network with each other.

I dont know about you but this is our forum and we need to make it work.

So lets get this show on the road

(09-12-2009 02:04 PM)LordNOX Wrote: [ -> ]Geez guys I know this is a forum for people with ME but we could at least make a small effort to post and network with each other.

I dont know about you but this is our forum and we need to make it work.

So lets get this show on the road

Hi Lee,
Welcome to the forum and yes not many so far have posted too much here. Might take a while for people to get into it, but lets hope more and more start posting and interacting soon.
All the best to you
chris

Absolutely right! Lets get posting....

(09-12-2009 02:04 PM)LordNOX Wrote: [ -> ]Geez guys I know this is a forum for people with ME but we could at least make a small effort to post and network with each other.

I dont know about you but this is our forum and we need to make it work.

So lets get this show on the road

Hello everyone, thought I would help to get things started while I can.
Having m.e. for about 12 years, I have tried many things along the way.
I thought I would share some of the things I have done in the hope that it may help someone:-
1. Get a diagnosis - it took me about two and a half years!
2. See Prof. Pinching -you need professional back up
3. Join groups such as MESH/AfME/MEAssoc. - even if you cant get to the meetings, they can provide help and support and info.
4. O.T - my m.e. specialist o.t. from Prof.Pinching was enormously helpful with support, info and practical strategies for lifestyle changes-thank you Penny.
5. Friends - choose them wisely, good friends will be kind, considerate, understanding and maybe helpful, keep them and dump the negative, unhelpful ones, we have not got the energy for that.
6.Doctors - umm - lucky to have fairly good ones but not always great, just keep going, suss out the best one in your practice and change if necessary.
7. Rest, rest, rest - your body needs it and don't feel guilty.
8. Get help - whatever help you can get - accept it, unless the person offering makes you feel worse, from doctors, o.t's. friends, family, church, charities, whatever -accept it, do not be a martyr, you are ill and need your energy for recovery. I have a cleaner once a week and would not be without him.
9. Eat well - as well as you can within budget and energy levels, organic where possible, raw foods are good as require no cooking, drink plenty of water, wholegrain, fruit and veg - you know the routine.
10. Supplements - may be controversial but I take quite a few.
11. Sleep - good quality sleep is essential. I sleep at least nine hours a night, more if possible. No tv etc in your bedroom.
More to come soon, Liz x

hiya please could you tell me what supplements you take and what help, thankyou very much xxx

(19-03-2010 07:38 PM)SharonR Wrote: [ -> ]hiya please could you tell me what supplements you take and what help, thankyou very much xxx

I take :- Vitamin B12 sublingual (I have a B12 deficiency as well,as some of us do. I recommend everyone to get their B12 tested)
Iron (works with B12 to produce blood, and I have heavy periods so take this to help counteract any loss),
Folic acid ( Need this with B12 and iron to make blood)
Vitamin C (to help ward against any infections)
Fish oil
Natural progesterone ( I am approaching menopause and my hormones are out of balance. I am oestrogen dominant so need progesterone, absolutely essential for me)
Agnus castus( helps with hormonal imbalances)
Calcium magnesium and zinc (calcium for ou bones, and I don't have a lot in my diet, magnesium for muscle cramps and zinc to guard against infections)
Evening primrose oil (for my pms!)
Chromium (I am trying to lose weight at the moment and this is supposed to help!)
Milk thistle (to support and help to detox the liver)
Feverfew (I have been getting migraines recently so am trying this to ward them off)
Of course this is my personal supplement regime but if any symptoms apply to you then it is worth a try. Be careful when you start any supplement or drug as we are known to be extra sensitive to some things.
I don't take many prescription drugs now, but have taken quite a few things in the past.
Will message again soon with other info, can't stay on computer too long.
Let me know more info and we can see what ideas we can come up with.
I am not a doctor, just someone with m.e. who has tried and researched quite a few things.
Meanwhile take care of yourself, be kind to yourself and rest, rest, rest.
Love Liz x

Yes, I am here and just about to go to the doc (very understanding GP) to see if I can have a meet with prof.Pinching. Thanks for the info on him and for info of supplements. I have been diagnosed by GP but seem to be stuck in limbo -this site is a lifeline.

(30-09-2010 09:17 AM)daisymay Wrote: [ -> ]Yes, I am here and just about to go to the doc (very understanding GP) to see if I can have a meet with prof.Pinching. Thanks for the info on him and for info of supplements. I have been diagnosed by GP but seem to be stuck in limbo -this site is a lifeline.

Let us know how you get on daisymay.

I have been referred to prof pinching, GP thought this was a good idea and will hopefully be attending at Wadebridge on the 21st.

(01-10-2010 04:26 PM)daisymay Wrote: [ -> ]I have been referred to prof pinching, GP thought this was a good idea and will hopefully be attending at Wadebridge on the 21st.

YAY good news daisymay.
Hope to see you on the 21st